Zhu Yunchang, a 75-year-old grandfather, cares for his grandson with a rare disease. He live-streams at night as a beauty influencerinfluencer/ˈɪn.flu.ən.sər/L2在社交媒体上有影响力的人，常通过分享生活或推广产品来影响他人a person who uses social media to affect what others buy or think to raise money. He said, 'She is my only daughter. If anything happens to her, my whole family will collapse.' His grandson, Cao Jingyan, has spinal muscular atrophy (SMA), a geneticgenetic/dʒəˈnet.ɪk/L2与基因有关的，由基因决定的related to genes or passed down from parents to children disease that causes muscle weakness.
Jingyan has SMA Type 1, the most severesevere/sɪˈvɪr/L2非常严重的，程度深的very serious or extreme in degree form. The specific medicine, nusinersen, was approved in China in 2019. Each injectioninjection/ɪnˈdʒek.ʃən/L2注射（药物进入身体的方式）the act of putting liquid medicine into the body using a needle costs 700,000 yuan, but insurance now covers it. The boy needs two injections per year. Zhu sold his flat and borrowed money to pay for early treatments.
Zhu learned massage skills from therapists and gives massages every day, even when sick. His daughter also works and live-streams, and Jingyan is now nine years old, able to go to school on good days. His grandfather hopes he will stand independentlyindependently/ˌɪn.dɪˈpen.dənt.li/L2独立地，不依赖他人without needing help from others, and their story has moved many people online.
